This post is intended for relatives and the near circle that involves people with fibromyalgia.
Although fibromyalgia is not noticeable, it is very real. Many people think that a person is not really sick unless they seem ill. When you have fibromyalgia, the person may be overflowing with health (from the outside), although inside they carry a procession of terrible and very real symptoms.
Fibromyalgia is a difficult disease to understand. Although there is no cure, it can be administered to have quality of life. Since all cases are different, treatments like exercise, medication or therapies do not work equally well for everyone. It is a constant quest to find what works best for you.
Do not let appearances fool you. Often, family members may have the perception that the person with fibromyalgia is not making enough effort to feel better because they do not eat well or do not exercise enough. The truth is that any effort that is made, however small, involves a labor or sacrifice far greater than it would cost to make one healthy.
Fibromyalgia is not a psychological problem. Many people think that it is impossible to have so many painful symptoms, and that nothing comes out in their medical examinations, so they often attribute this condition to a problem of psychological origin. And it is important to know that there is enough scientific evidence to prove that it is a real condition.
With fibromyalgia, life can change completely. It is natural that the person with fibromyalgia can no longer do the same things as before, or that he needs a lot of help from his relatives to be able to perform them. This can involve everything from changing habits to having to change jobs.
The fluctuation in activity levels is normal. A person with fibromyalgia can be very active for a day, as it may be that another day can not even get out of bed. The person is not lazy or pretends to avoid work. There will be days when your energy will be very low. Fibromyalgia is a disease with many ups and downs.
The person with fibromyalgia lives in permanent suffering. Even if you do not express it constantly, you will always feel pain throughout the body, exhaustion and many external stimuli such as smells, noises, lights, weather and other factors can make your discomfort worse. Try to put yourself in your place all the time so you can understand it.
Sometimes the person with fibromyalgia avoids physical contact. You may experience a lot of pain with non-painful stimuli, such as handshakes, back tapping, touching your arms and shoulders, and even with a strong hug, in general, any touch that produces friction or friction. No one should be offended if, at any moment, it is a question of avoiding this kind of intimacy.
Fibromyalgia fatigue is not a simple fatigue. It is not just physical exhaustion but also mental exhaustion, which does not improve with rest, and can prostrate a person in bed for several days. The person feels fatigued, exhausted or exhausted.
The person with fibromyalgia is not antisocial or apathetic. Often they refuse invitations or fail to attend meetings, because they are exhausted, are experiencing a crisis, or because they have a limited amount of energy, they fear that certain activities may trigger an outbreak that may worsen all of their symptoms. moment to another.
Fibromyalgia causes cognitive problems. The person forgets things (sometimes small, sometimes important) and has difficulty concentrating; This is known as fibroneblin. It often causes them to lose things or feel disoriented.
Avoiding stress is essential for the person with fibromyalgia. Stress has been shown to exacerbate the symptoms of fibromyalgia, increasing its pain, fatigue and malaise. Try to provide a quiet environment at home and avoid situations and stressors.
The person with fibromyalgia tends to be isolated. This does not mean that you want to end your social life or that you no longer enjoy. Rather, try to understand and keep in touch with her by showing that you have her affection and support when you need it. Offer your help to a task that at some point you can not do or can not do alone, such as shopping or picking up children at school.
The support and understanding of family members can make them feel better. Although there is very little that you can do about the disease, do not treat it as if nothing had happened, because this attitude can be perceived as apathy or disinterest, making you feel like you do not care, which affects your relationship with you as Your Physical and Emotional Health Instead, help with domestic chores that can involve a lot of effort, such as hanging clothes or making beds.
Relatives of someone with fibromyalgia should be well informed. If you do not know what this disease is, search the Internet, there are plenty of sources of information, allowing you to help your loved one to deal with it better than it is.
Follow him at your doctor’s office. This is one of the best ways to show your support. In addition, you help him complete the treatments, while understanding the state of his condition and his progress.
Good communication is essential in the family. Fibromyalgia generates feelings in both the patient and other family members. It is essential to express them in a healthy way to avoid hostile resentments and attitudes that can only aggravate the symptoms or cause seizures in the patient.
I hope these simple tips reach all those who have a loved one who is sick with fibromyalgia or some other chronic pain condition.
