Most people do not believe in fibromyalgia, they say that everything is in your head. You have also faced those people in your life. At some point people ask him about his illness, so it is our time to explain what fibromyalgia is like because they have not experienced what we are experiencing. Fibromyalgia is the most difficult thing to treat that people do not understand. We asked the question to our Facebook online community: How do you describe your feeling about fibromyalgia?
Fibromyalgia is a great incentive to live every day. If you wake up and can move, make the most of it. If you wake up and can not move, then do not do it. Rest a little, read a book, watch a movie. It may not be what you want, but it is what you have to do for that day. Tomorrow is a new day and may be different from yesterday. Thank you for having tomorrow because many people do not. I know it’s hard to feel that way when you’re in constant agony, but there’s always something good to do each day.
There are no words to describe how horrible hell is, it makes me feel like I no longer have a life. But we have compiled some of the pain descriptions our members tell us below.
This is what the community shares with us:
1. Imagine the worst flu you’ve had, multiply it by 10, imagine having been hit or hit by a car, then think of the most exhausted person you’ve ever been and multiply by 10. And maybe you can imagine how good a day living with Fibromyalgia feel A bad day really challenges all understanding and understanding.
2. You have run a 10K, with the flu and cut all your grass with scissors by hand. That kind of pain. But everyone expects you to do it again the next day because you do not look sick.
3. Pain that moves around your body. Take a point and hold your breath until it passes and then move to another point. You fight to pretend that you are not suffering and try not to cry or just cry. You feel tired but you can not sleep alone a version of sleep where you hear everything and you become adrenaline fully awake. With the heart beating and exhausted, you come back down if you can. The tips of your fingers and your fingers sometimes get numb and you can not stand the cold. Your muscles knot and twist, and you try to relax and not get tense because an excruciating headache may be the next. You have episodes of depression and I personally escape in music or fantasy to cope with a lot. You can not speak well all the time and you struggle to think clearly and concentrate. Yes, That is enough for now. Only an idea
4. Beth W- makes me feel like a tin man. That’s perfect, the tin man who needs to be greased in ALL joints. And someone holding a torch for ALL my aching muscles. With my head in a vice. Yes, that sums it all up, what a miserable existence
5. Marjie C – It makes me feel like a prisoner in my own body! Never knowing what torture will come next
6. Jessica C – I feel like I was hit with a bat, my muscles feel like they were tearing and pulling, I feel I have a 2 × 4 that rests on my shoulders all day while I have the flu and sweating death …
7. Vickie M- I feel like I have a little elf inside my body running with an ice picker and randomly stabbing my joints and muscles 24 hours a day, every day.
8. Kimmie G- Like a triple trailer, it passed me over; as if I needed to replace my hips; cut me at the waist because the lower half is not used amicably; your worst hangover X quadrillions with the worst humanity of flu 2 and a memory the size of a knat …… otherwise, I feel great!
9 . Tracey W – I have a ghost who loves to squeeze the parts of my body, like someone who digs his fingers into the skin and grasps the muscles in a tight grip.
10. A 20-pound gag is in your head, a 20-pound backpack weighs on your shoulders, your hips, your knees, your ankles, your feet and your hands hurt. At the tip of that pain there is a tingling as when the foot falls asleep … except that instead of just your foot, it is over your whole body. His eyes are sore from the tension, his skin sensitive to touch, his nose sensitive to smells. The lack of restful sleep keeps him stunned and fatigued.
11. Kerryn E – It’s like being drunk and drunk but also sick like the flu after doing intense full-body exercise and 10 rounds with the Tyson microphone but lost and living on another planet because I’m an alien compared to others who can not understand my life as
12. It is a living HELL! It hurts every day The pain moves continuously Just when you think there is no other place that can hurt, your skin hurts. It’s like a Mack truck running over you, and again. It takes hours to shower, make up and dry my hair. By the time I finish, I have to sit down and rest. It is difficult to sleep at night because you can not find a position that does not hurt.
13. Pain that intensifies from the head to the toes, as if someone was spilling a hot liquid down the throat and travels inside your body. The most difficult thing is to try to stay positive through everything. you never know if it will manifest as SII one day, migraines next and Epstein Barr. then depression at the top. I have more symptoms appearing daily. I have these horrible scars on the skin where the itching got so bad that I tore the skin and made it bleed. It has left terrible marks that seem burned. Ironically, the burning comes from inside.
14. Burning pain unbearable in my whole body, which seems to have set me on fire. Sharp pain in the feet and heels that feels like walking on fragments of glass. Take the hardest you’ve ever felt and multiply that by 100. Flu times 10. Burning pain when you touch your skin. Pain that no medication helps. So severe pain and fatigue, I can not work. I almost lost everything I worked so hard, waiting 2 years for my disability to be approved. Living with a severe debilitating pain and keep looking normal, which makes me feel guilty of not being able to work because people treat me like I’m lazy and I just do not want to work.
15. Sandra L – A thief who has stolen my life. No two days are the same. You never know what he is going to throw at you. Every day is something new, a new pain, a new flare. Be prostrate in bed. You are fighting against your body just to get through the day. No one should have to live. Do not exist like this Pain is an unbearable pain that most people can not handle. We have no choice but to accept it. The field of medicine has really disappointed us.
16. Tracy W – Like someone found the laces of all my muscles and tendons, then pulled them all the way down the thigh. I feel that way a lot and I think it’s not going to be a coincidence.
17. Imagine a nylon cable. Turn it against the grain. Do you see those little openings? Pour the crushed glass and the sand inside them. Now turn the cable closed. Do you feel the sand that does not allow the nylon to return to the original point? Now imagine that the nylon cord is each muscle fiber, tendon and ligament in your fingers, hands, wrists, ankles, feet and toes. Put on shoes. Gloves It is uncomfortable?
Now try to walk. Driving. Standing. Grocery shopping. It sounds horrible, does not it? Now imagine that you DO NOT get any relief. Some days add every part of your back to the list. Add nausea Add migraine headaches. You just want to sleep, but the dream does not come.
His head feels foggy. You lose words usually in the middle of the sentence. You can not think clearly. People think you are stupid, even if you are not. Add mental health problems to the mix. Do you feel overwhelmed? This is a good day. Tomorrow can be worse. You can not plan this. You do not receive any kind of warning.
18 . When I am having an outbreak, I feel acid flowing through me and burning me from the inside out. But on “normal” days I try not to recognize the pain; I just do what I have to do, but it’s always there back, preventing it from being all I know it could be.
The nervous pain is horrible and although I have pain in the neck, hips, shoulders, hands and feet that are fairly constant, I occasionally get a stab in the intestine or chest that comes out of nowhere and It leaves you breathless. far. The last time I felt good was for a full day when the doctor prescribed steroids. I had no pain and it was glorious, then it started to burn my stomach and cause cramps. I had to stop the medications. However, memory problems and fatigue bothered me more. Maybe because my mother has Alzheimer’s and I’m terrified she comes for me.
19. Janice R – I feel like I’m tied to two horses and going in different directions. My arms to one horse my legs to the other. My plugs feel out of joint. It gets terrible in times of outbreaks. Other times it’s not so bad, but it still hurts.
20. June J – I feel that someone is dancing in my brain and choosing what and when I become deaf, dumb and dizzy.
